
now i am in my winter holiday ,i am finding my parttime work ,though everyday
when i go out, i still feel sad about the reaction of other people ,but i dont want to lose the proverty to be a pretty girl in society ,i buy new dress,make up and go shopping ,hoping to make a good life,trying my best to ignore the sad things. I will look at the information and news about my disease and go a low-choline diet everyday to see the results,and take some pills to experience myself.
i want to say ,we could be a little sad about the disease,because it is natural,but we could not do nothing because of the effect of the disease,we deserve the best,for we have a stronger heart than those who have not this kind of disease,we could not lose anything else in our life ,i believe we can win at last . Wish you all a good luck and a positive attitude.
Now i am still at college,so i can not do many things for many reasons,such as the money,the language,the limitation of the tmau cure of my country,the
transportation to other country to see a doctor...
so i still do everything i could do
My Skype id is susanmiler ,hope we could communicate with each other ,i want to make friends with you all ,if you could hear my poor oral english