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  #1  
Old 22nd March 2009
LiveLovePray LiveLovePray is offline
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Posts: 281


Talking Reviews: Surgeries & Procedures

Hi All

If you've had a surgery or a less invasive procedure done it would be helpful to post your experiences and reviews on the board. :blush:

If you've already talked about your procedure, feel free to cut and paste it here. I will also add some of the posts from the old MSN board.

Please, place as many details, such as:

1. Procedure
2. Odor Type/Condition
(i.e. Underarm Bromhidrosis, Underarm Hyperhidrosis, etc.)
3. Year of Procedure
4. Review of Procedure


My Personal Experience:

Procedure: Axillary Botox Injections
Condition: Bromhidrosis and Mild Hyperhidrosis
Year: 3 separate sessions of botox type A injections during 2004 and 2005
Review: Unsuccessful. It didn't stop the sweating or the odor. But for the first couple of days it changed the smell of my odor to a more sweet smelling sweat. Not in a good way, just a different type of sweat smell from my usual sour, musty, typical underarm odor smell. :s


Procedure: ETS Surgery (Clamps) & Reversal ETS
Condition: Axillary Bromhidrosis and Mild Hyperhidrosis
Year: 2005
Review: First day after the surgery was a success. No odor, no smell, no reactions. Lots of pain. :-/ It went downhill afterwards. Sweating came back, odor came back and the reactions returned. I started sweating heavily in other places, such as my legs and lower back.

There is about a 2 week window after the ETS clamping sugery where you can have the procedure reversed and all the side effects and prior sweating will return. I waited a week and had the procedure reversed. Everything went back to normal. :-/ But at least it didn't get worse.


Cheers,

Melissa[hr]

For more info.
Source: http://bodyandbreathodor.multiply.com/journal/item/169

Date: July 26, 2002:
Author: Groovy Knight


Hello,

Actually this surgery is quite well known among this community. Axillary sweat gland excision is the surgical way to go for brommies, while ETS may be more suitable for people with hyperhidrosis. Barbara and "Still Hoping" in the old forum have done the excision and reported that it is successful. This is also what I have read on many web pages. In addition there aren't any horrible stories regarding this operation, because it is just a skin operation and the risk is minimal, while ETS involves cutting a nerve. For ETS, severe compensatory sweating / internal heating have been reported. The excision method is also safer (and more effective for brommies) because all you lose is your sweat glands in that area, but what ETS does is all the skin controlled by that particular nerve will no longer sweat, so compensatory sweating in other areas may be significant. The reason I say excision is more effective for brommies is that ETS is known to control eccrine gland sweating, and its effect on apocrine secretion (which causes the odor for us brommies) has not been reported; whereas in the excision surgery, eccrine glands and axiilary glands are removed directly.

What I am thinking is, rather than doing a life long deodorant search, why don't try something permanent. I will keep posting, and if my surgery is successful, I hope more and more people will try this and have their problems solved too. The surgery may sound a bit expensive but if it does work, it is certainly cheaper than buying deodorants for years to come, and most importantly, it shortens the suffer period remarkably.

Date: September 2, 2002
Authur: (Groovy Knight)


Hi everyone,

The surgery has been very effective so far, but long term effectiveness is to be seen. Here are some steps that I would advise you to take if the problem affects you so much that it really affects your life, like what it did to me.

1. Do a full body checkup for internal problems that may have caused the odor. Diabetes, renal or digestive system diseases can lead to body odor. The problem may also be caused by TMAU or yeast - if you suspect you have these problems you may need a doctor more specialized, but note that these symptoms are quite rare.

2. If you are healthy, the problem most probably comes from over development of aprocrine sweat glands. And in most cases it is the underarm. If this is the case, many members here have provided great solutions like different kinds of medication and deodorants (Zinc and magnesium were quite effective for me). If the problem still persists, or if it has reduced but still affects your life (like me), surgery may be the solution.

3. If you consider doing the surgery here is my experience. My surgery costs around $3000 US. I do not live in the US but I read from previous posts that in US the surgery costs about the same. After the surgery (please read the post "I am going to have my surgery" for details), you need to take care of the wound carefully for about 2 weeks. After that you will have a stretchy feeling when you raise your arms. But from what I have read and what the doctor told me, the feeling will leave in a couple of months.

I know some people consider surgery too aggressive. At the end of the day it really depends on how much the problem affects you. As for myself, I will become a professional and I can't risk having this problem at work. I would do anything to get rid of this problem - that's why I chose surgery. It really changed me a lot. I read one of the posts where the author had to decline invitations and social activities. I had done the same. But now people do not have reaction even if I am in a packed elevator or in a crowded subway train. I can go to the cinema again without worrying about others' reaction and can now actually enjoy the movie. In the past when I did these things, the experience was horrible. I skipped a lot of lectures in college. I really wish I had done this earlier.

I think I have found my solution. This may be the solution for you too, but even if you don't think so, we have a very nice group here which provides support. The group had comforted me a lot even though I didn't post a lot. I wish all bromies best wishes, and I will keep posting.

Cheers,
Groovy Knight
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  #2  
Old 22nd March 2009
teandtoast teandtoast is offline
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Posts: 40


RE: Reviews: Surgeries & Procedures

well heres mine

Procedure: Axillary Botox Injections
Condition: Hyperhidrosis & Brom of underarms
Year: 4 separate sessions during 2005-2007
Review: Helped with HH a little maybe like 50%...but if ever got anxious or hot or stressed sweating would be heavy as before. only lasted well for about a month though then went back to normal sweating.
didnt help with brom at all.
Im not sure if is really worth the effort or cost though (if you have to pay...I had mine on nhs so free) and is quite painful.

Procedure: Vaser
Condition: Hyperhidrosis & Brom of underarms
Year: 2008 twice - tried 2nd time after 1st time didnt work
Review: hasnt helped at all with either HH or brom ...defo not recommended ...costs a huge amount and didnt work...luckily I got most of my money back

I will be going for curretage next in May and hoping that will help with both conditions
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  #3  
Old 22nd March 2009
LiveLovePray LiveLovePray is offline
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Posts: 281


RE: Reviews: Surgeries & Procedures

Thanks for the feedback, TeandToast! It really helps us grow wiser as a group. I truly hope your procedure goes well in May. Please, don't forget to report back on any news! We'd love to hear about your progress.

Cheers:heart:

Melissa
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  #4  
Old 22nd March 2009
bridge
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RE: Reviews: Surgeries & Procedures

1. Procedure - Vaser liposuction
2. Odor Type/Condition - Underamr odor
3. Year of Procedure 1st 2008 2nd 2008 3rd 2009
4. Review of Procedure
No improvement 1,2nd time repeated as no improvement - 3rd worst odor

same as teatoast having cuttage done end april , hope to see some improvement after that
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  #5  
Old 29th March 2009
WorkingGirl WorkingGirl is offline
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Posts: 13


RE: Reviews: Surgeries & Procedures

Hi Melissa, do you also have sweating in your hands and feet? If so, I'm curious as to what kind of effect the ETS surgery had on that. Thanks!!
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  #6  
Old 29th March 2009
LiveLovePray LiveLovePray is offline
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Posts: 281


RE: Reviews: Surgeries & Procedures

Hi WorkingGirl

I don't have excessive sweating on my hands or feet, just my underarms. However, the ETS surgery made my hands excessively dry.. :-/ I actually think this surgery is best suited for those with hyperhidrosis of the hands, if they don't mind the compensatory sweating as a side effect. :-/

How have your symptoms been coming along? Were you still considering surgery?

Best,

Melissa

P.S. I would like to add that the reason I underwent the ETS surgery was due to my insurance coverage. It was the only surgery covered by my insurance forthe treatment of hyperhidrosis that I knew of at the time.
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  #7  
Old 30th March 2009
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hope4us hope4us is offline
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Posts: 343


RE: Reviews: Surgeries & Procedures

Melissa,
I really appreciate you starting this thread. We really need to know about surgeries, etc. that other people are having success with. It also helps to know about side effects, etc. Thank you again.

Glenna
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  #8  
Old 30th March 2009
WorkingGirl WorkingGirl is offline
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RE: Reviews: Surgeries & Procedures

Hi Melissa, I have some excessive sweating of the hands and feet, so I was considering ETS surgery at one point. My insurance also covers it. I just don't think that I want to take the chance with the compensatory sweating. I decided to concentrate on dealing with my underarm sweating because it is much worse. It obviously bothers me more because of the bromhidrosis. I'm glad for your feedback because it has solidified my decision even more.
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  #9  
Old 6th April 2009
LiveLovePray LiveLovePray is offline
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RE: Reviews: Surgeries & Procedures

Hi Working Girl,

I don't blame you for your concerns about compensatory sweating. It's a nightmare. Many of our members who have had ETS surgery in the 1990s before it was reversable have had terrible experiences with this.

Where you still considering surgery or something less invasive? Just curious...

Melissa
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  #10  
Old 7th April 2009
WorkingGirl WorkingGirl is offline
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RE: Reviews: Surgeries & Procedures

Hi Melissa, I am still seriously considering the Skoog procedure with Dr. Karpinski. Based on our discussions, I think I'm going to try the laser hair removal first, though. I made a consultation appointment with my dermatologist to get a little more information. If the laser hair removal does not work, I will most likely most forward with the surgery. I'm convinced that if I can control my sweating, the odor will be significantly decreased. I'll keep you posted on the results of the discussion I have with my doctor on the laser hair removal procedure.
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  #11  
Old 7th April 2009
LiveLovePray LiveLovePray is offline
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RE: Reviews: Surgeries & Procedures

Hi Working Girl,

I'm glad you're using the less invasive procedure, first. However, Laser Hair Removal can cause permanent scarring and severe burns. Make sure that who ever is performing it, has worked on numerous patients with your same skin tone. From what I've read, the Nd:YAG Laser is effective and gentle on all skin tones.

We all hope that this will signifantly improve your odor, though. Success stories are always wonderful, thanks for offering to keep us posted.

Is there a reason why you are leaning towards the Skoog Procedure and not other surgical procedures? Just curious.. I did speak with his office and they said it's only recommended for Hyperhidrosis, as it is less effective for Bromies.

Either way, I wish you success! Perhaps, Oxybutinin can help with your palm and foot sweating since it's successful in handling all over sweating. I have used Robinul and did not get good results, but the Oxybutinin was much more effective and produced much less side effects for me.

Best,

Melissa
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  #12  
Old 30th December 2009
fab113 fab113 is offline
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Re: Reviews: Surgeries & Procedures

Bridge and teaandtoast,

How did your surgery that was done earlier this year go? I might consider this route in the near future.
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  #13  
Old 4th January 2010
bridge
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Re: Reviews: Surgeries & Procedures

Fab what happend was - me and teatoast was going get liposuction with curettage with this other doctor in harley street after the Vaser failed
- Dr R - and he basically refused to help - He offered to see me again , yet was £200 pounds per appoitment or something stupid -

The surgery itself - Should be £200 appoitment and then £750 for operation - Thats the normal price for hyperhidrosis suffers £950

T&t did not have good experence with the doctor and didn't go back -

I found doctor wanted to help me - Yet could see he thought i was whacko - He wanted to see me for another three/four appoitments - So it was to much of gamble for me to stick with him - As this doctor could of milked me for thousands and not gave me the surgery i wanted..

So thats why it was not done.

its Liposuction with remo cuttarge and is only two doctors that preform it - One in london and other is up north in the uk.. The doc we saw was the one in london - Its just to much effort to locate the other doc and go up north -- As i think LSA looks more promising and thats why i gave up on the idea.

The doctor is good usually for hyperhidrosis suffers and respected - i was advised to see him by lady who runs hyperhidoris boards ( tho don't have this ) she happend to be at my Vaser op and we emailed few times --- She also told me vaser was unsucessful for most hyperhidrosis she talked to - thats different story tho lol

------

Last edited by bridge; 4th January 2010 at 02:20 AM.
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  #14  
Old 3rd February 2010
JoeB JoeB is offline
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Re: Reviews: Surgeries & Procedures

I had the Skoog procedure done. It didn't help much. I also get Botox, which helps some, but not competely. I have mild hyperhydrosis with brom.
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  #15  
Old 18th February 2010
helpingothers helpingothers is offline
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Posts: 2


Re: Reviews: Surgeries & Procedures

I had surgery for bromhidrosis in 2002. I had the skin from my arm pits removed. A plastic surgeon in Dallas, TX removed it for me. Since my surgery, I have been able to truly manage my body odor. I still have the odor in my genital area but now I bath twice a day and use summer eve's wipes throught out the day. I have also uses alcohol to remove the oil that causes the odor. I also get a brazilian wax every 5 weeks to remove hair so my genital area is easy to clean. The skin around my nipple also secretes an oil. If someone were to taste the skin around my nipple it would leave an awful taste in one's mouth. The same is for my genital area.

So I am not sure if you all have the same thing I do....but I had the skin removed from under my arm and it worked. I have a zig zag scar under both arms.

Through my research, my issue is oil secretion (can't remember what type its been years since i even revisited this issue).

By the way, before removing the skin (the skin that grows the hair) of my arm pits. I also had liposuction done under my arm (arm pits). The plastic surgeon turned the lipo machine up so it was sucking right under my skin. After he sucked a ton out......he smelled the substance he removed from my arm pits and it said that he could smell the foul odor.
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